Well it's {un}official.
Addi has PKD. I talked to the NP at the nephrology department for a good 20 minutes today. Basically getting my family background and going over test results. Since she just had all this blood work done there's no need to do it all again. She will continued to get monitored by the best nephrologist there, Dr. Bobrowski. We don't go in for an appointment until August. They want to continue checking her blood pressure, u/s and creatinine levels for any signs the cysts are getting worse.
Ugh. This sucks. While this isn't a death sentence by any means, just knowing my families history of it scares the living crap out of me.
It just worries me that if the cysts are already this big, what's going to happen in another 3 years?
So at least that's one "problem" out of the way. Now to figure out what's causing her to throw up....
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